Tuesday, October 13, 2009

good news and continued prayers

Since finding out that someone posted Kaia's story and prayer requests on babycenter.com's forum for babies with heart defects, I've been an avid reader/prayer for other heart babies on there that are still struggling.

A lovely lady, Paula, from there was following Kaia's story after she found out her baby girl has HLHS (hypoplastic left heart). Baby Hope was born September 14th with kidneys deemed "too underdeveloped for surgery" at the hospital she was born in. Instead of "taking her home to die", mom and dad took her to the Cleveland Clinic for a second opinion, where a God-sent surgeon agreed to give Hope the Norwood surgery, the same surgery Kaia had. In under two weeks post-op, baby Hope is now in the step-down unit, getting ready to go home with her family. Please keep baby Hope in your prayers. She still will need the other two surgeries HLHS kids need to get them to where they need to be to function as well as possible. She has seen many miracles and, no doubt, will be seeing many more. She's been close to my heart and constantly in my prayers. Her story is here.

Another baby needs many many prayers, as well. His name is Aiden and was born to two very loving and extremely devoted parents, Levi and Tracy. Aiden was born on October 9th and has multiple heart defects including unbalanced AVSD with pulmonary atresia and heterotaxy syndrome). I read his story and am all too familiar with the words and feelings and raw emotion of watching your child, wondering if you will ever be able to take them home. Giving it to God's hands and trusting Him to help when all medical options seem to be failing. Baby Aiden will need a full heart transplant, and it looks like they may have found a hospital willing to do it. Please keep baby Aiden, mom and dad in your thoughts and prayers. You can see his sweet face and follow his story here.

there are so many kids out there with these defects, and it's something I never thought nor heard about until it happened to us. These children are truly amazing and special and have shown strength in unfathomable ways. And after being a parent to a heart baby, I know the kind of strength it takes for the moms and dads to get through it as well. They need lifted as well.
thanks for helping!

1 comment:

  1. Stephanie...your writing is beautiful. Thank you for keeping us and all the heart babies and parents in your thoughts and prayers. Your strength after what you have been through is amazing.